The charity was founded and named after Jenna Robinson, who passed away April 2016 at the age of 17 due to an Epilepsy related illness. Jenna lived with Epilepsy but her love and her life was dedicated to dance and the other performing arts.
The charity was established as the Jenna Robinson Scholarship Fund, which provided scholarships to those in the performing arts, and this continues today. Through her struggles and after her passing, Jenna’s family became aware that there was a need in the area for supporting families living with epilepsy and the charity was started. We expanded our focus to include awareness and support of those families living with Epilepsy and SUDEP (Sudden Unexplained Death in Epilepsy).
To do this we:
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Provide Scholarships for those in the Performing Arts field
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Help families meet their financial goal for seizure dogs
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Help families by providing financial assistance to obtain epilepsy monitoring systems
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Provide speakers when requested
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Support the Epilepsy Foundation, Partners Against Mortality in Epilepsy (P.A.M.E) and SUDEP Institute
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Continue to be Patient Advocates for those living with Epilepsy
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Provide shared experiences with families who are currently living with epilepsy and connecting them with resources and services