Jenna Robinson Charities 9 4

The charity was founded and named after Jenna Robinson, who passed away April 2016 at the age of 17 due to an Epilepsy related illness. Jenna lived with Epilepsy but her love and her life was dedicated to dance and the other performing arts.

The charity was established as the Jenna Robinson Scholarship Fund, which provided scholarships to those in the performing arts, and this continues today. Through her struggles and after her passing, Jenna’s family became aware that there was a need in the area for supporting families living with epilepsy and the charity was started. We expanded our focus to include awareness and support of those families living with Epilepsy and SUDEP (Sudden Unexplained Death in Epilepsy).

To do this we:

  • Provide Scholarships for those in the Performing Arts field

  • Help families meet their financial goal for seizure dogs

  • Help families by providing financial assistance to obtain epilepsy monitoring systems

  • Provide speakers when requested

  • Support the Epilepsy Foundation, Partners Against Mortality in Epilepsy (P.A.M.E) and SUDEP Institute

  • Continue to be Patient Advocates for those living with Epilepsy

  • Provide shared experiences with families who are currently living with epilepsy and connecting them with resources and services

Seizure Monitor Recipient Colin Hickman
Our friend, Eli, and his seizure alert dog, Prescott! Eli was the first person JRC was able to help attain a seizure service animal! If you or someone you know is need of assistance purchasing a seizure alert dog, please reach out via our Contact Us page for more information.

It works. It really works.

Thank you Jenna Robinson Charities for the Embrace 2. At 1:18am we were alerted to help.

To be honest, I didn’t have full faith in the technology and even wondered if it would really work. Sometimes I feel like we are way too dependent on technology but last night, we were so thankful to have this in place.

If you are a family with a child that has seizures please think about getting monitoring systems for them. We lived a very long and worried 9 years without anything. Partly because we had no idea things like this existed and partly because of the cost. There are things you can do and people who are willing to help with that.

- Ashley Hickman Thrive, Mother of Colin Hickman